Charlotte Figi, CBD Pioneer and ‘Charlotte’s Web’ Namesake, Dies From COVID-19

Article by Bruce Kennedy, Leafly News

CBDIndustry Charlotte Figi, CBD pioneer and ‘Charlotte’s Web’ namesake, dies from COVID-19 Bruce Kennedy In this 2014 photo, Matt Figi hugs and tickles his once severely ill 7-year-old daughter, Charlotte, as they walk together inside a greenhouse for a special strain of medical cannabis known as Charlotte's Web, which was named after the girl early in her epilepsy treatment. (Brennan Linsley/AP) UPDATE FROM PAIGE: Our family is grateful for the outpouring of love while we mourn the loss of our Charlotte. Charlotte had a catastrophic form of early childhood epilepsy called Dravet syndrome. We are moved by the continual impact that Charlotte’s life has made shedding light on the potential of cannabis for quality of life. We’d like to clarify some of the information that has been shared. Our entire family had been ill for close to a month starting early March, but did not initially fit all of the criteria for COVID-19 testing. For that reason, we were told to self-treat at home unless the symptoms worsened. Charlotte’s symptoms worsened, so she was admitted to the PICU on April 3rd. She was treated on the COVID-19 designated floor using all of the medical protocols set in place. On Friday April 3rd, she was tested, the results were negative for COVID-19 and discharged on Sunday April 5th when she seemingly began to improve. Charlotte had a seizure in the early morning on April 7th resulting in respiratory failure and cardiac arrest. Seizures are not uncommon with illness and paramedics were called returning us to the PICU. Given our family’s month-long history with illness and despite the negative test results, she was treated as a likely COVID-19 case. Her fighting spirit held out as long as it could and she eventually passed in our arms peacefully. We’d like to thank the staff at Children’s Hospital Colorado, Colorado Springs for their swift response and the impeccable and compassionate care that we received.

The COVID-19 pandemic has claimed the life of Charlotte Figi, the Colorado girl whose brave public use of medical marijuana to treat epilepsy led to the widespread acceptance of medical cannabis and CBD.

According to reports on social media, Charlotte Figi and some members of her family recently tested positive for the novel coronavirus. After being released from the hospital on Sunday, Charlotte reportedly “took a turn and was rushed back,”  but ultimately succumbed to the disease. She was 13 years old.

The Colorado Sun reported the news early this morning, and a family friend posted this on the Facebook page of Paige Figi, Charlotte’s mother, late last night:

An inspiring life

Charlotte lived in Colorado Springs, CO, and was the namesake for the groundbreaking CBD strain known as Charlotte’s Web.

She had her first seizure when she was three months old. By the time she was three, Charlotte was having up to 300 grand mal seizures every week. Diagnosed with Dravet Syndrome, Charlotte began to lose her ability to walk and talk.

Her parents, desperate for relief, scoured the internet looking for alternatives to mainstream medical treatments that didn’t appear to help.

Paige Figi, Charlotte’s mother, found a cannabis dispensary in Denver that had a cannabis extract. It was said to be low in THC but high in CBD. After paying $800 for two ounces of the oil, she gave a small dose to Charlotte.

“When she didn’t have those three, four seizures that first hour, that was the first sign,” Paige later told CNN. “And I thought well, ‘Let’s go another hour, this has got to be a fluke.’”

But the seizures stopped for a week and were then reduced to just two or three a month, and allowed Charlotte to stop her other seizure medications.

The Figi family then began to work with the Stanley brothers, six Colorado-based siblings who grew cannabis and who were working on a high-CBD, low-THC strain. Extracts from those crops were used to treat Charlotte and other seizure patients. The Stanley brothers named the strain Charlotte’s Web to honor the girl who inspired it.

The Stanley brothers also established a non-profit organization, the Realm of Caring Foundation, which donates cannabis to both adults and children suffering from a variety of diseases and ailments.

CNN, Sanjay Gupta told the world

Charlotte’s story, and the apparent success of cannabis as an alternative medical treatment, made international news in 2013 when she was featured in a CNN documentary called “Weed,” hosted by the network’s chief medical correspondent, Dr. Sanjay Gupta.

In an editorial published on CNN’s website at the time, titled “Why I changed my mind on weed,” Gupta said Charlotte’s story was a revelation to him.

“I have seen more patients like Charlotte first hand,” he wrote, “spent time with them and come to the realization that it is irresponsible not to provide the best care we can as a medical community, care that could involve marijuana.”

“We have been terribly and systematically misled for nearly 70 years in the United States, and I apologize for my own role in that.”

Gupta’s words and the CNN documentary broke down a lot of conventional medical wisdom about marijuana and cannabis. It is also credited with changing public opinion on medical cannabis.

‘A little girl who carried us all on her small shoulders’

On the Charlotte’s Web website, the Stanley brothers have published a memorial to their “beloved sister.”

“Charlotte was ten feet tall and carried the world on her shoulders,” they wrote.

Read the full article here.

About Dankr NewsBot

Beep Boop. I'm just a bot who brings you the dankest news in the biz

Leave a Reply

Powered by Dragonballsuper Youtube Download animeshow